Rochester, N.Y. – A true team effort Saturday at Cobbs Hill, rallying to fight one of the most common, life-threatening genetic diseases in America.
The Western New York Walk for PKD is one of dozens hosted in cities nationwide this weekend.
Patients battling polycystic kidney disease were joined by their families, friends and the medical community.
One of those families, is the Grace family.
Courtney and Ian Grace were given grim news four years ago when their son Tanner was diagnosed in utero with autosomal recessive polycystic kidney disease.
Chances of survival are good, if the child lives past the newborn period.
Tanner is now three years old, and his parents know the importance of hope, faith, and support.
“The walk this year is incredible. I think it’s a record breaker for donations, for our team certainly and for Tanner,” said Ian Grace. “He’s an amazing little guy and an amazing story.”
“To give people hope out there that if you have a child diagnosed with ARPKD, that there is hope and to not give up hope,” said Grace.
All money raised at the Rochester walk and the other ones across the country go directly to research.